P.S. Did I Mention…

I have a terrible sense of direction. Even in familiar situations, I can get completely turned around. I can handle “Left” and “Right”, but if you try to tell me “East” or “West” it makes me laugh.

You may as well be speaking Mermish.

Once I picked a friend up from the train, got distracted talking, and turned the wrong way onto the highway. In my defense, it had been a long time since I’d seen him and we were having a Great Discussion. After 1 1/2 hours I realized that we should have been home by now; we had to turn around and didn’t get home until 3 hours later.

I’ve adapted. I am quick to ask for directions. I leave a little extra “getting lost” time when I go to a new place. I don’t panic, just calmly turn around again, and again, and again, until I finally get where I’m going. Or call Glen in tears, cursing the creators of GPS and the idiots at Mapquest, when I’m mostly just mad at myself.

We all have abilities AND disabilities. Some are more obvious than others, but everyone has both. There is no perfect human specimen (and if there was, who would want to be around such an obnoxious know-it-all?). We all try to maximize our strengths and struggle through our weaknesses. And often it is our struggles which form the Very Best Part of who we are. God likes to use our DISabilities most of all.

Our children are the same. We love them for Who They Are, not What They Can Do. In fact, their disabilities are part of their unique make up. And while we wish life were easier, we love even those parts too.

All our children have Special Needs.

L needs to be reminded to let things go, to take risks and to quit bugging her sister.

C needs help to regulate her emotions, to behave selflessly and to not let her sister bug her.

B takes longer to learn new things, has low muscle tone and a speech delay (aka – Down Syndrome).

S was born 3 months early, he has a rare genetic syndrome and a moderate hearing loss.

The truth is, we don’t know the extent of our new son’s special needs, but he does have them. We haven’t spoken about them to many people, because, to us, they are beside the point.

Oh, I know they will very much affect our lives. We have researched and continue to do so. He is doing AMAZINGLY WELL so far; his developmental assessments use words like “surprising” and “remarkable”, especially about his cognitive abilities. But he will have learning disabilities his whole life. He will take a longer to catch up in milestones. He may never be “just like everyone else.”

But so what?

He is our son and that is the most SPECIAL thing about him.

If you are person who prays, please pray for our boy tomorrow. He is having surgery on his skull. They assure us that this is a fairly common procedure with quick recovery time, but it is still upsetting. Especially since we can’t be there with him every step of the way. He needs familiar people around him and, as much as we love him already, we are strangers.

So here’s me, praying.

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About So Here's Us.... life on the raggedy edge.

I'm a bookworm, nature lover, kick-boxer, candy fiend, sci fi geek, home body, progressive Christian and part-time student. I love my crazy life and the messy, fun, stubborn, silly, brilliant people who populate it. View all posts by So Here's Us.... life on the raggedy edge.

3 responses to “P.S. Did I Mention…

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