Tag Archives: we are unique

March 21, 2014

I Am Me: a poem for World Down Syndrome Day

By So Here's Us.... life on the raggedy edge.

Hello.
It’s me.

You can call me…
sweetheart
kiddo
sunshine

Call me…
student
equestrian
swimmer

Call me…
artist
dancer
singer

Call me friend.

I am me.

I am…
charming
stubborn
silly

I am…
affectionate
moody
kind

I am…
imaginative
exuberant
bossy

I am sweet.

I am me.

I have…
parents who adore me
sisters who tease me
a little brother who follows me around

I have…
grandparents who dote on me
teachers who are proud of me
friends of all shapes, sizes and colours

I have…
fears and dreams
favourite songs and movies
strong opinions about my own life

I have Down Syndrome.

I have
Down Syndrome.
But I am not Down Syndrome.

iammeI am me.

So here’s my homage to the lovely “Lose the Label” campaign (@Lose_the_label). Because we are, all of us, more than our diagnoses and disabilities.

March 21 is World Down Syndrome (aka Trisomy 21) Day. You know, 3/21 for Trisomy 21… get it?

In honour of the unique and wonderful people we know, who happen to have Down Syndrome (especially the one we feed and hug and tuck into bed every night) I am posting a link to this tearjerker. I defy you to watch it and not get choked up:

Dear Future Mom…

12 Comments   |  tags: , , , , , , , | posted in poetry, special needs

May 17, 2013

This is Our Song

By So Here's Us.... life on the raggedy edge.

songThe frantic buzz of the strings – busy, busy, busy boy.

The lilting chime of the bells – sweet, charming girl.

The rock ‘n roll squeal of the electric guitar – dramatic, fun girl.

The delicate dance of the woodwinds – gentle, beautiful girl.

The deep thrum of the bass – steady, brilliant man.

The every-changing melody of the lyrics – clumsy, passionate woman.

This is our song.

The syncopated beat of everyday routine

The discordant strains of conflict

The lighthearted whistle of totally adorable

The crash of tantrums

The faint hum of grief

The trill of humor

The every-changing tempo of life

And always, the counterpoint of

purpose

prayer

joy

This is our song.

It’s the only one of it’s kind!

So here’s us, in this Five Minute-ISH Friday. Not exactly by the rules, written one line at a time throughout a morning of errands and border waits and toddler chasing. But I loved the prompt – SONG.

5minutefridayLinking up to Lisa-Jo Baker’s Five Minute Friday post

1. Write for 5 minutes flat for pure unedited love of the written word.

2. Link back here and invite others to join in.

3. Be generous and leave an encouraging comment for the person who linked up before you. That’s the best part about this community.

And if you don’t have a blog, feel free to leave your five minutes of writing as a comment. And we’ll love on you there.

8 Comments   |  tags: , , , , , | posted in parenting, poetry

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