I remember the moment you were born. It was so quiet – not a cry, not a gurgle, nothing… Your Dad tells me that it was only about 30 seconds before you started crying, but I had already started freaking out, “Is she okay?! Is she okay?! What’s wrong?” That little squall was one of the most beautiful sounds I’ve ever heard.
When they held you up for me to see I couldn’t believe how adorable you were. I fell even more in love with you. You looked like a little baby burrito and you had the sweetest little face (still do).
We spent the next 4 weeks sitting on uncomfortable stools while peering into the baby aquarium (aka: incubator), then holding you gingerly so as not to jar all the tubes and needles, taking turns driving to the hospital in the middle of the night to try to get you to eat, and finally bringing you home where you belonged. That whole time, while I was scarfing down cafeteria food and covertly skimming through your file, I was researching. While I shadowed the nurses and learned about everything in the special care nursery, I was researching. While I was playing milk cow and preparing tube feedings – still researching.
We were given a stack of books, brochures and web page print outs like you wouldn’t believe. And to be honest, they were helpful. They prepared us for the leukemia scare, the tests and medical procedures, explaining Down Syndrome to your sisters and a thousand other things. But they were filled with frightening statistics and scary possibilities.
You were already so precious to us, and the thought of you facing all those difficulties broke my heart. I wish I had known then what wonderful things lay ahead. I wish they had told me that.
I wish they had told me that you would love with abandon. That one of our biggest problems would be trying to get you to stop kissing EVERYONE. That you would melt the stoniest heart with your huge grin. That we would make friends everywhere we went, because you’re so cute and charming!
I wish they had told me that you would make us laugh everyday with the crazy things you do. That you would pray every single night for God to bless your “chocolate face”. That you would perform beside the TV whenever we watch “So You Think You Can Dance” – ballet, the samba, hip hop… you name it. That you would end each dance, song and occasional mealtime prayer with “Ta Da!”
I wish that they could have told me, along with all those intimidating statistics that there was a 100% chance of fun. That despite all the headaches and heartaches along the way, you would fill our life with pride and laughter and joy. I think this song from MY childhood says it best:
You are a promise.
You are a possibility.
You are a promise, with a Capital ‘P’.
You are a great, big bundle of POTENTIALITY!
So here’s to B, my pride and joy! Happy 7th Birthday!
September 12th, 2011 at 9:57 pm
How wonderful to be so loved!!!! God is so good to give us so much, to entrust such blessings into our care. Glen and Christie may you continue to reap a harvest of joy from your little one and may she continue to bring smiles and joy to many others. Love Lorry and Phil
September 12th, 2011 at 11:13 pm
Thanks! What can we add to that – she is a gift!
September 13th, 2011 at 4:23 am
Beautiful,
Happy Birthday B, we love you!
September 13th, 2011 at 8:26 am
Christie, Can I be your fourth daughter so you can write a birthday post for me? What a gift these are to your whole family! Noone can ever question the Hoos’ family love! You are a fabulous family. To your precious B, Happy Birthday! Continue to love one another with such abdandon. Estelle
September 13th, 2011 at 8:12 pm
Would that make Little C my grand-daughter. Awesome – all the fun and none of the responsibility. Plus, I’m already used to bossing Dave around – he would be a great son-in-law. Yep, it sounds like a good deal – consider yourself adopted!
September 14th, 2011 at 7:25 am
So beautiful. I wish someone had told me those things too. Thanks for reminding me.
September 14th, 2011 at 6:14 pm
Thank you! I love your article on trusting our instincts. It’s definitely true!
October 8th, 2011 at 3:19 pm
I can’t believe she’s 7. I remember so clearly when she was born. Happy Birthday B.
October 8th, 2011 at 7:56 pm
I know, right? It goes so fast.
It’s good to hear from you! I’m so glad for facebook – helps me keep up with all my “imaginary friends” as Glen calls my internet buddies.
December 30th, 2011 at 9:46 pm
[…] Promise with a Capital “P”: What I wish they would have told me when my daughter was born with Down Syndrome. […]